The 'short' version of my story, what shaped who I am and what I fight for daily. Soon, I will record an account of the details of the brain tumor/diagnosis to link this video to. I was so lucky not to stay dead.. Rest in Peace to this beautiful soul! http://youtu.be/2X1zzfdZfXg
Tym Rourke's life changed forever when his 15 month-old son suffered a seizure in the early morning of June 18th, 2006. Within a week he was diagnosed with an Atypical Teratoid Rhabdoid Tumor (ATRT) of the Brain/Central Nervous System. Over the next two years Tym and his wife supported their young child through over 60 grueling weeks of chemotherapy, six weeks of radiation and countless surgeries and procedures at Children's Hospital and Dana Farber's Jimmy Fund Clinic. Tym has since become an outspoken voice on pediatric cancer and patient and family centered care. He currently serves as Co-Chair of the Dana Farber Pediatric Patient and Family Advisory Council. He continues to share his experience as a parent and caregiver on his blog, www.vampdaddy.com, and is currently working on a memoir about his family's experience. When not focusing on his family, Tym is the Director of Program for the New Hampshire Charitable Foundation, one of the largest Community Foundations in the United States. There he oversees the Foundation
We dedicate our resting hours on day one of Pablove Across America to Avalanna Routh. We're not exaggerating when we say Avalanna is loved worldwide. Doing a nightly dedication to Avalanna was not what we had in mind. Sadly, Avalanna passed away just this past Wednesday from AT/RT, a very rare central nervous system cancer with only a 15% cure rate. We learned about Avalanna from our friends at Stand Up 2 Cancer and mourned her loss with the world. Let's get to the day where childhood cancer is trending on twitter - not because we've lost a child, but because we've found a cure.
Central nervous system (CNS) tumors include both non-malignant and malignant tumors of the brain and spinal cord. Primary malignant CNS tumors are the second most common childhood malignancies, after hematological malignancies, and are the most common pediatric solid organ tumor.Although progress has been made in the treatment of childhood tumors, significant mortality and morbidity are still associated with malignant brain tumors.In children, primary CNS tumors predominate, and about half are located in the posterior fossa In contrast, most CNS tumors in adults are metastatic lesions to the cerebral cortex. These differences translate to differences in clinical presentation between pediatric and adult malignant CNS tumors.Tumors of neuroepithelial tissue (incidence: 3.4 per 100,000 person-years) are also referred to as gliomas, which are tumors derived from glial cells (ie, astrocytes, oligodendrocytes, and ependymal cells). These tumors account for almost 75 percent of all primary childhood CNS tumors, and includeAstrocytic tumors.Embryonal CNS tumorsCNS primitive neuroectodermal