Langerhans Cell Histiocytosis

13:42

This is the brave story of my son Ryans fight against a rare blood disease called Langerhans Cell Histiocytosis. Ryan was born with Langerhans Cell Histocytosis, however it was not diagnosed until he was 4 months old (and had progressed to Multi System Langerhans Cell Histiocytosis in this time). The disease had really got hold of him at this stage and was killing him. This video tells the story of Ryans battle with this disease and his journey so far. I really hope this video will raise awareness of this rare blood disease - Langerhans Cell Histiocytosis. Update 17th April 2013: Ryans review/scans/tests went very well in Our Ladys Childrens Hospital, Crumlin, Dublin. After 2 years & 2 months of chemo, Ryan has finally finished! He will be closely monitored by his Consultant Oncologist for a long while yet with frequent checks ups/xrays/scans etc. He will continue the TB medication for another few months until his immune system has built back up to a safe level for this medication to be stopped. Please God the LCH will stay well away now that Ryan has finished chemotherapy. He

1:45

Renton was a patient of Dr. Panchoosingh at St. Joseph's Children's Hospital, where he was diagnosed him with a rare condition called Langerhans cell Histiocytosis (LCH). Watch Renton's story. To learn more about cancer and blood diseases, visit http://www.StJosephsChildrens.org or call (813) 321-6820.

4:54

This is a video about a rare blood disease called Langerhans cell histiocytosis (LCH). My son was born with it (Skin-only LCH).

En film om min son Elmers ovanliga sjukdom Langerhans cellhistiocytos. Han föddes med LCH i september 2009. Följ hans liv med sjukdomen i min blogg: http://beckahbitch.se

Jag har även gjort en sida om histiocytossjukdomar: http://histiocytos.blogg.se

2:02

Ian, a rare disease patient, shares his story about living with Langerhans Cell Histiocytosis. You can learn more about this disease on the NORD Rare Disease Database http://rarediseases.org/rare-disease-information/rare-diseases/byID/408/....

8:58

This is a story about Rylan! I did this video for a school project and also for friends and family! I hope you all enjoy! Much love and blessings!!!

Advertisement