TEDxAmoskeagMillyard - Tym Rourke - Surviving the Unexpected

Tym Rourke's life changed forever when his 15 month-old son suffered a seizure in the early morning of June 18th, 2006. Within a week he was diagnosed with an Atypical Teratoid Rhabdoid Tumor (ATRT) of the Brain/Central Nervous System. Over the next two years Tym and his wife supported their young child through over 60 grueling weeks of chemotherapy, six weeks of radiation and countless surgeries and procedures at Children's Hospital and Dana Farber's Jimmy Fund Clinic. Tym has since become an outspoken voice on pediatric cancer and patient and family centered care. He currently serves as Co-Chair of the Dana Farber Pediatric Patient and Family Advisory Council. He continues to share his experience as a parent and caregiver on his blog, www.vampdaddy.com, and is currently working on a memoir about his family's experience. When not focusing on his family, Tym is the Director of Program for the New Hampshire Charitable Foundation, one of the largest Community Foundations in the United States. There he oversees the Foundation's grantmaking, including a substantial fund to support the prevention and treatment of Substance Abuse Disorders. He was listed as one of Union Leader's "40 Under 40" in 2004. In the spirit of ideas worth spreading, TEDx is a program of local, self-organized events that bring people together to share a TED-like experience. At a TEDx event, TEDTalks video and live speakers combine to spark deep discussion and connection in a small group. These local, self-organized events are branded TEDx, where x = independently organized TED event. The TED Conference provides general guidance for the TEDx program, but individual TEDx events are self-organized.* (*Subject to certain rules and regulations)

Tym Rourke's life changed forever when his 15 month-old son suffered a seizure in the early morning of June 18th, 2006. Within a week he was diagnosed with an Atypical Teratoid Rhabdoid Tumor (ATRT) of the Brain/Central Nervous System. Over the next two years Tym and his wife supported their young child through over 60 grueling weeks of chemotherapy, six weeks of radiation and countless surgeries and procedures at Children's Hospital and Dana Farber's Jimmy Fund Clinic. Tym has since become an outspoken voice on pediatric cancer and patient and family centered care. He currently serves as Co-Chair of the Dana Farber Pediatric Patient and Family Advisory Council. He continues to share his experience as a parent and caregiver on his blog, www.vampdaddy.com, and is currently working on a memoir about his family's experience. When not focusing on his family, Tym is the Director of Program for the New Hampshire Charitable Foundation, one of the largest Community Foundations in the United States. There he oversees the Foundation'

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Brain and Spinal

Date: 12/31/15
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Pablove Across America 2012 Night 1: Avalanna Routh

We dedicate our resting hours on day one of Pablove Across America to Avalanna Routh. We're not exaggerating when we say Avalanna is loved worldwide. Doing a nightly dedication to Avalanna was not what we had in mind. Sadly, Avalanna passed away just this past Wednesday from AT/RT, a very rare central nervous system cancer with only a 15% cure rate. We learned about Avalanna from our friends at Stand Up 2 Cancer and mourned her loss with the world. Let's get to the day where childhood cancer is trending on twitter - not because we've lost a child, but because we've found a cure.

We dedicate our resting hours on day one of Pablove Across America to Avalanna Routh. We're not exaggerating when we say Avalanna is loved worldwide. Doing a nightly dedication to Avalanna was not what we had in mind. Sadly, Avalanna passed away just this past Wednesday from AT/RT, a very rare central nervous system cancer with only a 15% cure rate. We learned about Avalanna from our friends at Stand Up 2 Cancer and mourned her loss with the world. Let's get to the day where childhood cancer is trending on twitter - not because we've lost a child, but because we've found a cure.

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ACE PG Concept Bridge (CB) 003

Central nervous system (CNS) tumors include both non-malignant and malignant tumors of the brain and spinal cord. Primary malignant CNS tumors are the second most common childhood malignancies, after hematological malignancies, and are the most common pediatric solid organ tumor.Although progress has been made in the treatment of childhood tumors, significant mortality and morbidity are still associated with malignant brain tumors.In children, primary CNS tumors predominate, and about half are located in the posterior fossa In contrast, most CNS tumors in adults are metastatic lesions to the cerebral cortex. These differences translate to differences in clinical presentation between pediatric and adult malignant CNS tumors.Tumors of neuroepithelial tissue (incidence: 3.4 per 100,000 person-years) are also referred to as gliomas, which are tumors derived from glial cells (ie, astrocytes, oligodendrocytes, and ependymal cells). These tumors account for almost 75 percent of all primary childhood CNS tumors, and includeAstrocytic tumors.Embryonal CNS tumorsCNS primitive neuroectodermal tumors (PNETs), and atypical teratoid rhabdoid tumors. Although these tumors have been classified as primitive neuroectodermal tumors based upon the theory that they share a common progenitor cell, there is cytogenetic and molecular evidence that suggests medulloblastoma is a separate and distinct histologic entityMedulloblastoma is the most common malignant brain tumor of childhood, accounting for approximately 20 percent of all primary tumors of the central nervous system among patients less than 19 years of agefollowing were the most common symptoms and their frequency:

Headache (33 percent)
Nausea and vomiting (32 percent)
Abnormal gait or coordination (27 percent)
Papilledema (13 percent)
Seizures (13 percent)
Unspecified symptoms and signs of ICP (10 percent)
Squint (7 percent)
Change in behavior or school performance (7 percent)
Macrocephaly (7 percent)
Cranial nerve palsies (7 percent)
Lethargy (6 percent)
Abnormal eye movements (6 percent)
Hemiplegia (6 percent)
Weight loss (5 percent)
Unspecified visual or eye abnormalities (5 percent)
Altered level of consciousness (5 percent)

Central nervous system (CNS) tumors include both non-malignant and malignant tumors of the brain and spinal cord. Primary malignant CNS tumors are the second most common childhood malignancies, after hematological malignancies, and are the most common pediatric solid organ tumor.Although progress has been made in the treatment of childhood tumors, significant mortality and morbidity are still associated with malignant brain tumors.In children, primary CNS tumors predominate, and about half are located in the posterior fossa In contrast, most CNS tumors in adults are metastatic lesions to the cerebral cortex. These differences translate to differences in clinical presentation between pediatric and adult malignant CNS tumors.Tumors of neuroepithelial tissue (incidence: 3.4 per 100,000 person-years) are also referred to as gliomas, which are tumors derived from glial cells (ie, astrocytes, oligodendrocytes, and ependymal cells). These tumors account for almost 75 percent of all primary childhood CNS tumors, and includeAstrocytic tumors.Embryonal CNS tumorsCNS primitive neuroectodermal tumors

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'My story' Childhood Brain tumor - Juvenile Pilocytic Astrocytoma

The 'short' version of my story, what shaped who I am and what I fight for daily. Soon, I will record an account of the details of the brain tumor/diagnosis to link this video to. I was so lucky not to stay dead.. Rest in Peace to this beautiful soul! http://youtu.be/2X1zzfdZfXg

The 'short' version of my story, what shaped who I am and what I fight for daily. Soon, I will record an account of the details of the brain tumor/diagnosis to link this video to. I was so lucky not to stay dead.. Rest in Peace to this beautiful soul! http://youtu.be/2X1zzfdZfXg

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Brain and Spinal

Date: 12/31/15
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Brain Tumor | Carlos Luceno's Story

Diagnosed with a grade two astrocytoma brain tumor, Carlos Luceno is currently living with brain cancer. Carlos is receiving his treatment and care from Johns Hopkins neurosurgeon Dr. Henry Brem at the Johns Hopkins Comprehensive Brain Tumor Center. Learn more about the Johns Hopkins Comprehensive Brain Tumor Center http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/br....

Diagnosed with a grade two astrocytoma brain tumor, Carlos Luceno is currently living with brain cancer. Carlos is receiving his treatment and care from Johns Hopkins neurosurgeon Dr. Henry Brem at the Johns Hopkins Comprehensive Brain Tumor Center. Learn more about the Johns Hopkins Comprehensive Brain Tumor Center http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/br....

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Date: 12/31/15
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Types of Brain tumors

Gliomas, glioblastoma, astrocytomas, medulloblastoma, oligodendroglioma
To know more about this topic, visit http://healthdrip.com/glioma-brain-tumor/ This video has been uploaded for educational purpose! Original credit of the video goes to Johns Hopkins Medicine: Visit them http://www.youtube.com/user/JohnsHopkinsMedicine

Gliomas, glioblastoma, astrocytomas, medulloblastoma, oligodendroglioma
To know more about this topic, visit http://healthdrip.com/glioma-brain-tumor/ This video has been uploaded for educational purpose! Original credit of the video goes to Johns Hopkins Medicine: Visit them http://www.youtube.com/user/JohnsHopkinsMedicine

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